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PCL Resources

The following are some helpful person-centered resources.  This information is not intended to be inclusive of all person-centered published materials, but rather to provide some good resources to help you better understand person-centeredness.

There are numerous terms used to describe a focus on the person receiving services or supports.  The medical/clinical field generally uses the term “patient-centered” as they use the term “patient” for people receiving services.  It can be argued that even “patients” would prefer to be thought of as “persons.”

  • Dilley, L., Geboy, (2010).  Staff perspectives on person-centered care in practice.  Alzheimer’s Care Today.  July-September:  172-185.
  • Berwick, D.M., (2009). What ‘patient-centered’ should mean: Confessions of an extremist.  Health Affairs – Web Exclusive. 19 May:w555-w565. [Dr. Berwick is the current director of CMS.]
  • Center for Excellence in Assisted Living, (2010).  Person-centered care in assisted living: An informational guide.  Accessed on-line at www.theceal.org.
  • Epstein, R.M.,Fiscella, D., Lesser, C.S., Stange, K.C., (2010).  Why the nation needs a policy push on patient-centered health care.  Health Affairs. 29(8): 1489-1495.
  • Edvardsson, D., Innes, A., (2010). Measuring Person-centered care: A critical comparative review of published tools. The Gerontologist. 50(6): 834-846.
  • The Council on Quality and Leadership, (2010).  What really matters: A guide to person-centered excellence.  Accessed on-line at www.c-q-l.org.
  • White, D.L., Newton-Custis, L., Lyons, K.S., (2008). Development and initial testing of a measure of person-directed care. The Gerontologist. 48(1): 114-123.
  • Planetree & Picker Institute, (2010). This Guide is a concrete expression of a vision shared by Planetree and Picker Institute for improving the delivery of patient and resident-centered care across the healthcare continuum. Accessed on-line at www.residentcenteredcare.org/.
  • Frampton, S.B., Gilpin, L, Charmel, P.A., (2003).  Putting patients first: Designing and practicing patient-centered care.  Jossey-Bass: San Francisco, CA.

    • The CEAL, General Home and Community-based Services Attributes and Assisted Living Indicators

    Penn State Study, Caregivers and Their Relatives Disagree About Care Given and Received. A recent study interviewed 266 pairs of primary caregivers and their loved one with mild to moderate dementia and the results appear in the August issue of the Gerontologist.

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