The following are some helpful person-centered resources. This information is not intended to be inclusive of all person-centered published materials, but rather to provide some good resources to help you better understand person-centeredness.
There are numerous terms used to describe a focus on the person receiving services or supports. The medical/clinical field generally uses the term “patient-centered” as they use the term “patient” for people receiving services. It can be argued that even “patients” would prefer to be thought of as “persons.”
- Dilley, L., Geboy, (2010). Staff perspectives on person-centered care in practice. Alzheimer’s Care Today. July-September: 172-185.
- Berwick, D.M., (2009). What ‘patient-centered’ should mean: Confessions of an extremist. Health Affairs – Web Exclusive. 19 May:w555-w565. [Dr. Berwick is the current director of CMS.]
- Center for Excellence in Assisted Living, (2010). Person-centered care in assisted living: An informational guide. Accessed on-line at www.theceal.org.
- Epstein, R.M.,Fiscella, D., Lesser, C.S., Stange, K.C., (2010). Why the nation needs a policy push on patient-centered health care. Health Affairs. 29(8): 1489-1495.
- Edvardsson, D., Innes, A., (2010). Measuring Person-centered care: A critical comparative review of published tools. The Gerontologist. 50(6): 834-846.
- The Council on Quality and Leadership, (2010). What really matters: A guide to person-centered excellence. Accessed on-line at www.c-q-l.org.
- White, D.L., Newton-Custis, L., Lyons, K.S., (2008). Development and initial testing of a measure of person-directed care. The Gerontologist. 48(1): 114-123.
- Planetree & Picker Institute, (2010). This Guide is a concrete expression of a vision shared by Planetree and Picker Institute for improving the delivery of patient and resident-centered care across the healthcare continuum. Accessed on-line at www.residentcenteredcare.org/.
- Frampton, S.B., Gilpin, L, Charmel, P.A., (2003). Putting patients first: Designing and practicing patient-centered care. Jossey-Bass: San Francisco, CA.
The CEAL, General Home and Community-based Services Attributes and Assisted Living Indicators
Penn State Study, Caregivers and Their Relatives Disagree About Care Given and Received. A recent study interviewed 266 pairs of primary caregivers and their loved one with mild to moderate dementia and the results appear in the August issue of the Gerontologist.