As the founder of the nation’s only assisted living consumer advocacy
and education organization (the Consumer Consortium on Assisted Living), the
recent series of articles that shine a headlight on the pervasive care problems
in many assisted living facilities is helpful and informative for prospective
assisted living consumers. The series of articles in USA Today, The Washington
Post and Newsday heartbreakingly detail the fact that too many assisted living
facilities are simply not prepared to care for the special needs of their frail
and vulnerable residents despite marketing claims to the contrary.
Many of the tragic incidents cited in the articles happened to residents
with dementia. The problems in caring for this vulnerable population are typically
rooted in staffing. All too often there are insufficient numbers of staff
to meet promised resident care needs and staff frequently are not adequately
trained or prepared to handle the challenging needs of individuals with dementia.
This same issue plagues quality of care in nursing homes. A manicurist, for
example, in New York must complete 250 hours of classroom training and preparation
and pass a written and practical exam before they can begin working. A caregiver
working in assisted living in New York only needs 40 hours despite the fact
that they are responsible for much more intimate and complex care. Is it any
wonder that there are care problems?
The remedy would appear to be simple – better train and prepare all
staff. However, assisted living providers claim there is sufficient staff
and they are adequately trained despite overwhelming evidence otherwise. Newspaper
articles about tragic resident care outcomes have proliferated over the past
10 years. The U.S. General Accounting Office has issued several studies that
found problems with care in assisted living. Recently, researchers at the
University of North Carolina, Chapel Hill’s Program on Aging, Disability
and Long-Term Care found that residents with Alzheimer’s are not getting
adequate care in assisted living facilities. Indeed, a national study on assisted
living funded by the U.S. Department of Health and Human Services found “the
majority of staff members were almost completely unaware of what constitutes
normal aging.”
There is a culture of denial among facility owners that pervasive care problems
exist. Typically these individuals are not hands-on managers, and are more
likely familiar with a hospitality business model. However, providing a safe,
caring environment for vulnerable assisted residents requires more than clean
sheets and good food. Many owners and managers see adding extra care staff
and their training as a drain on corporate profits. This perpetuates a cycle
of substandard care.
If it was easy to care for assisted living residents, they would most likely
continue to live at home. It is not easy and is the most significant reason
people move their loved ones into facilities. To admit residents and not have
enough well trained staff simply invites disaster and essentially amounts
to corporate malfeasance.
According to a study conducted by a fellow of the American Academy of Nursing,
good quality care actually costs less than poor quality care in nursing homes
to the tune of over $13 per resident per day. Although the study was conducted
in nursing homes, the general concept applies to assisted living. This amounts
to a cost savings of over $350,000 annually for each Sunrise-sized facility.
Add in the fact that facilities providing consistent, quality care do not
have to defend against litigation by families suing over tragic outcomes.
The Consumer Consortium on Assisted Living proposes a solution to all assisted
living owners that would benefit everyone: invert their current business model
by hiring enough staff and training and preparing them thoroughly, and wind
up with greater profits by delivering quality, consistent resident care. The
money saved by not defending against law suits triggered by poor care could
instead be used for subsidies to low-to-moderate income individuals. Not only
do assisted living owners, consumers, and communities win, but America wins
by being assured that its assisted living facilities consistently provide
quality resident care. Indeed, assisted living owners could share this success
with their nursing home brethren and revolutionize how America cares for its
elder citizens needing residential long term care – and just in time.
Older adults will soon outnumber children for the first time in our nation’s
history. Individuals 85 and older are currently the fastest growing sector
of our population, and the tidal wave of aging baby boomers will soon follow.
This excellent series of articles is a call to action to institute effective
change. If people don’t speak out to fix the present problems, we are
doomed to live with the consequences in the future. Will we endure all too
often substandard care in ‘chandeliered’ facilities or will we
have the courage to speak out and demand change? The choice is ours.
Karen Love, a former assisted living administrator and family member of an
assisted living resident, is the founder and chair of the Consumer Consortium
on Assisted Living (CCAL). CCAL was founded in 1995.