Recent front-page newspaper articles in The Washington
Post, USA Today, and Newsday among others bring to public attention problems
in assisted living – a
new long term care residential option for this generation. Assisted living was
developed in the mid 1980’s as an alternative to nursing homes, a setting
many elderly individuals fear more than death.
Assisted living has helped to transform the ‘institutional’ model
environment of nursing homes by focusing attention on an environment people
actually could live in. Unfortunately the same degree of attention has
not always gone to ensuring the quality of resident care is as good as
the physical environment. Thus fueling the all too frequent newspaper articles
detailing heartbreaking stories about poor resident care outcomes.
The blame falls not only on providers of assisted living, but also on
states. In an effort to avoid the problems associated with federal regulation
and oversight of nursing homes, assisted living has been regulated at the
state level. Many states have been slow to develop regulations for assisted
living and establish survey and oversight efforts. State budget issues
are further eroding an already weak system creating a patchwork of poor
care and protection for their vulnerable, elderly citizens.
Many of the tragic incidents cited in recent articles happened to assisted
living residents with Alzheimer’s disease and other dementia. The
problems in caring for this vulnerable population are typically rooted
in staffing. All too often there are insufficient numbers of staff to meet
promised resident care needs and staff frequently are not adequately trained
or prepared to handle the challenging needs of individuals with dementia.
This same issue plagues quality of care in nursing homes. A manicurist,
for example, in New York must complete 250 hours of classroom training
and preparation and pass a written and practical exam before they can begin
working. A caregiver working in assisted living in New York only needs
40 hours despite the fact that they are responsible for much more intimate
and complex care. Is it any wonder that there are care problems?
The remedy would appear to be simple – better train and prepare
all staff. However, assisted living providers claim there is sufficient
staff and they are adequately trained despite overwhelming evidence otherwise.
There is a culture of denial among facility owners that pervasive care
problems exist. Many owners and managers see adding enough staff and their
training as a drain on corporate profits thus perpetuating a cycle of substandard
care.
If it was easy to care for assisted living residents, they would most
likely continue to live at home. It is not easy and is the most significant
reason people move their loved ones into facilities. To admit residents
and not have enough well trained staff simply invites disaster and essentially
amounts to corporate malfeasance.
According to a study conducted by a fellow of the American
Academy of Nursing, good quality care actually costs less than poor quality
care in nursing homes to the tune of over $13 per resident per day. The
savings come from: lower liability insurance and workman's compensation
rates; legal fees from not having to defend against poor care litigation;
and high costs associated with frequent staff turnover. Although the study
was conducted in nursing homes, the general concept applies to assisted
living also. This could amount to a cost savings for owners of over $350,000
annually for each Sunrise-sized facility.
Older adults will soon outnumber children for the first time in our nation’s
history. Individuals 85 and older are currently the fastest growing sector
of our population, and the tidal wave of aging baby boomers will soon follow.
National newspapers have provided the public with a window into serious
problems for a very vulnerable sector of our population. If we don’t
speak out to fix the present problems, we are doomed to live with the consequences
in the future. Will we endure all too often substandard care in ‘chandeliered’ facilities
or will we have the courage to speak out and demand change? The choice
is ours.
Karen Love, a former assisted living administrator and family member
of an assisted living resident, is the founder and chair of the Consumer
Consortium on Assisted Living (CCAL). CCAL was founded in 1995.